Applications for the Cohort Study grant have now closed. The programme will not reopen until after the pilot of the first grant has been completed and evaluated by the Board which will be 2024.

This pilot programme supports the development of UK-based cohort studies of well-defined rare patient populations generating valuable datasets relating to patient phenotypes, outcome data and research data such as genetic data.

The ideal cohort study would provide a framework for several rare disease entities in multiple sites, or other areas where funding is limited.

At a glance

Closed until further notice

Maximum value:
Up to £50,000 a year, to a total of £150,000 per project over three years. That is the maximum value and timeframe, but shorter timeframes with proportional funding would be encouraged.

BSH will not provide long-term support. Successful applicants will show how BSH support will enable applications to other funders for large-scale, continuing support.

The applicant must:

  • have been a BSH member for at least three years
  • not have received a cohort study grant from BSH before (nor has their project)
  • be the Principal Investigator or a Co-Principal Investigator with direct responsibility for the preparation, conduct and administration of the project

Currently closed

Grant details

For full details of the grant, including application requirements and reviewing criteria, please see the Cohort Studies Grant Summary and read the grant terms and conditions.

Successful applicants will receive an award letter that will form the basis of an agreement between the BSH and the Host Institution and set out agreed milestones or further terms as relevant to the proposed project.

For more information, see our Grants FAQs or contact us at [email protected].

How to apply

Applications have now closed.